The second International Living Better Symposium in London brought together more than 200 people on October 10 for a day of ...

Scientists around the globe are working tirelessly on behalf of the VEDS community to advance research progress. And, they’re ...

Bella had a way of making people feel as though they were the only person in the world when she was talking to them,” said ...

Michigan Heartworks Gala Jack Roth Stadium Club | 1201 S Main St, Ann Arbor, MI 48109 View Detail ...

Marie Law with her son, David. He is the only one of her five children who has Stickler syndrome. Marie Law, 63, says that in the first 20 years of her life, her “hypernasal voice” had prompted many ...

The Isabella Noelani Parson Welch Memorial Grant for VEDS Research supports innovative research focused specifically on Vascular Ehlers-Danlos syndrome (VEDS). This two-year grant provides up to ...

Thanks to the generosity of our community, The Marfan Foundation is convening Science in Spain, a worldwide scientific meeting with the goal of moving us toward new breakthroughs, better treatments ...

There are subtle changes at Camp Victory for Kids’ two five-night summer camp sessions each year. A new evening activity. An off-site adventure. A different craft or elective. But one thing stays the ...

Thanks to the generosity of our community, the Marfan Foundation is able to power world-class research and convene scientists to move us toward new breakthroughs, better treatments and hope for a ...

Early-career scientists are bringing their work—and their ideas— to the 2026 Science in Spain gathering. There’s a lot to be excited about at the 2026 Science in Spain gathering: world-class ...