The second International Living Better Symposium in London brought together more than 200 people on October 10 for a day of ...

Scientists around the globe are working tirelessly on behalf of the VEDS community to advance research progress. And, they’re ...

“Bella had a way of making people feel as though they were the only person in the world when she was talking to them,” said her dad, Peter Welch. She was deeply sensitive and caring, a careful ...

Start here to begin learning about Marfan syndrome and related conditions. We offer a range of online and in-person resources to help you get started and learn more when you are ready. Learning ...

The Marfan Foundation drives research, education and support – and builds community – to improve outcomes, save lives and empower all people to thrive who are living with Marfan, Loeys-Dietz, VEDS, ...

Learning you or someone in your family has Marfan syndrome can deeply affect the quality of life of the individuals and families coping with it. That’s why it’s important to get an appropriate ...

The Marfan Foundation is registered as a not-for-profit corporation under the laws of the State of Maryland, and is exempt from United States federal income taxes under section 501(c)(3) of the ...

Volunteering for The Marfan Foundation enables you to give back to the community and help create a brighter future for everyone living with Marfan syndrome and related conditions. There are many ways ...

Our annual conference offers opportunities for people of all ages to learn about Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions from experts in the field, network ...

Michigan Heartworks Gala Jack Roth Stadium Club | 1201 S Main St, Ann Arbor, MI 48109 View Detail ...

If a dissection is suspected, a person needs immediate medical attention and should go to a hospital emergency department right away. What you can do: Unless someone has a known diagnosis of Marfan ...